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Call for Suffolk residents to join pioneering Parkinson's research

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People living with Parkinson's and their families are being invited to participate in a groundbreaking study on facial expression reduction at the University of Suffolk.

Why it matters: Facial masking is present in around 92 per cent of Parkinson's cases, yet it remains less understood than physical symptoms like tremors. The study aims to develop resources that could improve communication and quality of life.

An elderly man with his hand on his head
People living with Parkinson's and their families are being invited to participate in a groundbreaking study on facial expression reduction at the University of SuffolkGetty Images

The details: The research, the first of its kind in the UK, will examine how reduced facial expressions affect daily life and social interactions with friends, families and strangers.

Dr Abigail Webb, Clinical Research Fellow at the University of Suffolk, is leading the collaborative project with East Suffolk and North Essex NHS Foundation Trust (ESNEFT).

"Non-verbal facial communication is so important for how we interact with one another, but for people living with Parkinson's this becomes difficult," said Dr Webb.

"Many people will be aware of the loss of motor skills associated with Parkinson's such as shaking but the reduction of facial expression can be a real barrier, often misinterpreted as negative personal characteristics, and cues that can lead to misunderstanding," she added.

What to look out for: One-to-one interviews will be conducted online with:

  • People living with Parkinson's

  • Those who have had close relationships with them before and after diagnosis

Interviews are expected to last about an hour and will take place throughout spring.

What they're saying: Dr Webb notes the research will "ultimately create an information support resource that promotes an understanding what reduced facial emotion communication feels like for people living with Parkinson's and their loved ones, and access to strategies to bypass misunderstandings and promote effective non-verbal communication in different scenarios."

How to get involved: To register interest in participating, go to: https://uos.questionpro.eu/facesSignup

The bigger picture: The research is funded by the University of East Anglia Health and Social Care Partners (UEAHSCP) and includes collaboration with ESNEFT Parkinson's nurse Sheeba Suresh and research nurse Hannah Stansfield.

The team hopes to capture successful communication strategies that participants have already developed, incorporating these into their final resources.

The bottom line: This pioneering local research aims to transform findings into practical support resources for people living with Parkinson's, with solutions recommended by those directly affected by the condition.

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500 mobile phones donated to support domestic abuse victims in East Anglia

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Virgin Media O2 Business has donated over 500 mobile phones to help survivors of domestic abuse and sexual assault across East Anglia, including Suffolk.

Why it matters: The donated devices will enable vulnerable people to contact support services, emergency services and family members when their own phones have been broken or confiscated by perpetrators.

The phones will be distributed to Leeway, Catch-22, and Mountain Healthcare support services across five counties – Bedfordshire, Cambridgeshire, Hertfordshire, Norfolk and Suffolk.

Some devices will come with free SIM cards and mobile data from the National Databank, which was founded by Virgin Media O2 and the digital inclusion charity Good Things Foundation. The National Databank is described as "like a food bank but for free data, texts and calls, helping to connect people in need."

Leeway

Leeway provides support to adults and young people looking to break free from domestic abuse in Suffolk and Norfolk.

The background: The donation comes as part of Virgin Media O2 Business's social value commitment through a recent police contract with 7F Commercial Services.

7F Commercial Services uses collaborative buying power for seven police forces in the eastern region, including Bedfordshire, Cambridgeshire, Hertfordshire, Norfolk, Suffolk, Essex, and Kent, to obtain better value for money from their contracts.

What they're saying: Suffolk's Police and Crime Commissioner, Tim Passmore, said: "Supporting victims is a key responsibility for me as Police and Crime Commissioner. We commission many services to support victims to help them cope with the immediate impact of crime, and, as far as possible, recover from the effects.

Tim Passmore, Police & Crime Commissioner for Suffolk
PCC

"I absolutely support this 'social benefits' approach. Funding is always tight and anything we can do to work with the commercial sector to access additional funding to support this work gets my full support.

"I know from speaking to victims just how devastating it is to be denied something as basic as the ability to talk to family and friends. I hope these phones provide a useful lifeline for victims of domestic abuse and sexual assault to feel more secure and less isolated."

Charlotte Hails, Head of Public Sector Vertical Strategy at Virgin Media O2 Business, said: "As a former senior police officer who specialised in Safeguarding and Public Protection, I know first-hand that mobile phones and connectivity are critical to ensuring victims and survivors are not isolated and can receive support.

"By partnering with local organisations in East Anglia, Virgin Media O2 Business is helping ensure victims and survivors receive the smartphones and data they need. This builds on our commitment to support police forces and communities across the UK to improve public safety and reduce crime."

The bottom line: The initiative aims to reduce isolation among victims of domestic abuse and sexual assault by providing them with secure means of communication through donated mobile devices.

Oliver Rouane-Williams speaking with an elderly couple in the town centre

We can't do this without you!

If you value strong, free, independent local media that fights tirelessly for our town, please consider contributing just £24 per year

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