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University launches study into impact of MND on relationships

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University of Suffolk researchers are investigating how Motor Neurone Disease (MND) affects couples' relationships in a new pilot study that will run until March.

Why it matters: Initial studies show MND can significantly impact couples as partners adjust to new caregiving roles, leading to reduced intimacy, worsening communication and declining health for the spouse providing care.

The details: The University of Suffolk's Institute of Health and Wellbeing is conducting research to:

  • Gather testimonies from couples where one partner has MND or Amyotrophic Lateral Sclerosis (ALS)

  • Identify support needs at different stages of the disease

  • Develop interventions through virtual or in-person workshops

  • Work alongside healthcare professionals, service commissioners and voluntary sector groups

A woman siting on a chair next to her husband in a wheelchair
University of Suffolk researchers are investigating how Motor Neurone Disease (MND) affects couples' relationships in a new pilot study that will run until MarchGetty Images

What they're saying: "From informal discussions with people who cared for loved ones impacted by MND, it was clear that couples face additional challenges beyond the healthcare problems associated with the disease," said Dr Noreen Cushen-Brewster, Associate Dean for Research at the University's School of Nursing, Midwifery and Public Health and theme lead for long term conditions.

For context: MND affects cells in the brain and nerves called motor neurones, which gradually decline over time. The condition can impact movement, swallowing and breathing while also shortening life expectancy.

What's next: The study, funded by Norfolk and Waveney Integrated Care Board's research and development team, Research Capability Funding and East Coast Community Healthcare, will collect feedback until the end of March.

Researchers plan to use the findings to develop support packages and seek further funding for testing with patients and spouses.

The bottom line: Couples affected by MND can participate in the study or join a patient involvement group by contacting n.cushen-brewster2@uos.ac.uk.

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Theatre project transforms lives through art

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We publish the stories that matter and champion everything that's good about our town – without the ads, popups or tracking

Participants have praised the life-changing impact of a creative wellbeing programme at Ipswich's New Wolsey Theatre, designed to support people with multiple health conditions.

Why it matters: With long-term health conditions predicted to affect 68% of people by 2035, innovative approaches to supporting wellbeing and reducing health inequalities are becoming increasingly vital.

Tell Your Story exhibition at New Wolsey Theatre
Tell Your Story exhibition at New Wolsey TheatrePolly AldertonNew Wolsey Theatre

The big picture: Tell Your Story, produced by New Wolsey Theatre's Creative Communities team and funded by NHS Suffolk and North East Essex Integrated Care Board, brings together people with multiple health conditions in a supportive environment to develop skills in photography, animation and creative writing.

What they're saying: "This programme has been confidence building. It's a really lovely way of bringing people together in a safe space. The gentle introductions, and support and help of the team, makes you feel accepted and part of a little family," one participant said.

By the numbers:

  • 12 workshops led by photographer Gillian Allard and writer Dean Parkin

  • 30% of people currently live with a long-term condition

  • 70% of all health and care spending goes to long-term conditions

What's happening: A free exhibition showcasing participants' work is running in the theatre's lounge area until Monday, 17 February.

The bottom line: Tell Your Story demonstrates how creative expression can improve wellbeing, resilience and sense of agency for people living with long-term health conditions.

Oliver Rouane-Williams speaking with an elderly couple in the town centre

We can't do this without you!

If you value strong, free, independent local media that fights tirelessly for our town, please consider contributing just £24 per year

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