Skip to main contentEnter
Join 8,080+ people who care about this town
Ipswich.co.uk logoSupport our work
News

"She's an absolute trooper": Ten-year-old Charlotte's story captures hearts, and a national award nomination

A remarkable ten-year-old girl who refuses to let a rare muscle condition define her has become the star of an award-nominated film. 'Charlotte's Story', captured by local filmmaker Kevin Burch, showcases the vital work of East Anglia's Children's Hospices.

The big picture: Charlotte's journey from spending her first four months in hospital to becoming a fun-loving, confident child shows the transformative impact of EACH's Treehouse hospice in Ipswich.

Why it matters: The Charity Film Awards (CFAs) are the world's largest cause-based film campaign, with over 2.7 million viewers expected to tune in to the 2024 virtual event. Winning would shine a national spotlight on the charity's vital work.

Behind the story: Charlotte lives with Nemaline Myopathy, a rare genetic disorder causing muscle weakness throughout her body. Despite facing continuous health challenges, particularly during winter, she maintains a remarkably positive outlook.

"She's so resilient, pragmatic and robust," says her mum Nova. "She continues to defy the odds but is an absolute trooper and fights with all her might."

Charlotte's story

Life at the Treehouse: Charlotte particularly enjoys:

  • Music therapy, especially playing the keyboard

  • Baking cookies for carers and nurses

  • Arts and crafts

  • Playing board games

  • Using the hospice garden swing

"The staff are really nice and I enjoy chatting to them," Charlotte says. "My favourite thing is music therapy...it makes me happy."

What they're saying: The man behind the camera, Kevin Burch, said: “I’m delighted that the film has been put forward because it helps highlight the incredible things which happen at EACH and the immense skill and dedication of their team.

“Charlotte and Jenny, the nurse, were so natural and relaxed that it made my job of filming them so easy. It’s a privilege that I get to do what I do behind the camera."

The bottom line: Charlotte's story represents thousands of children and families supported by EACH across East Anglia. You can help recognise Charlotte's story and EACH's vital work by voting for the film at https://smileycharityfilmawards.com/films/charlottes-story.

You can read it for free thanks to the generous support of ICS and Ipswich School

Despite a lack of promotion, the big reveal drew a good crowd of passersby

We're regenerating Ipswich – but we can't do it without you!

People tell us every day that our work matters – that it's making Ipswich better; that it's needed. But our work costs money, and unlike the Ipswich Star, we're not funded by national advertisers or owned by corporate US overlords. For just £4.75 a month, you can help fund our mission to restore pride of place and accelerate the much-needed regeneration of the town we call home.
Become a member →

In other news...

News

From heroin to ketamine: How Suffolk's drug use is changing

Drug consumption habits in Suffolk are shifting, with people moving away from opiates such as heroin and towards cocaine, ketamine and crack – and a new report warns the county is also facing a growing threat from synthetic opioids 500 times stronger than heroin.
byand
Continue reading →
News

Suffolk councillor backs National Year of Reading

A Suffolk County Council cabinet member has pledged her support for the National Year of Reading and visited a local library on World Book Day to join a session for babies and toddlers.
by
Continue reading →
News

Ipswich man charged with murder after woman found dead

An Ipswich man has been charged with murder following the death of a 28-year-old woman whose body was found at a Russet Road address in the early hours of Tuesday morning.
by
Continue reading →
News

Anglia Retail Park to get 24 new EV chargers

Anglia Retail Park is set to nearly triple its electric vehicle charging capacity, with 24 new chargers to be installed alongside the Lidl store.
by
Continue reading →
Load more content
Our journalism is free thanks to
Our journalism is free thanks to
Want our best content delivered to your inbox every Friday?

Have you subscribed to our free weekly newsletter?

If you haven’t, you really should. You’ll get our best content delivered to your inbox every Friday afternoon, just in time for the weekend. You can unsubscribe at any time, although 99.7% of people don’t.

  • Lee Walker
  • Joe Bailey of Brighten the Corners
  • Mark Hubert
8,080+ people are already loving it